Keynotes

1/4

The Future of Healthcare - How Patient Leaders are Driving Innovation in Drug Development

Summary: The healthcare industry is at a turning point—one where patients are no longer passive recipients but active leaders shaping the future of medical innovation. In this keynote, we will explore how patient advocacy is accelerating innovation, redefining clinical trials, and influencing healthcare technology. The future of healthcare will not be dictated solely by corporations or policymakers—it will be co-created with patients at the center. The future of medicine will be faster, more effective, and more impactful—because those who need it most are now leading the way.

1/4

Summary: This topic highlights Swapna Sasidharan’s journey as a mother turned advocate and founder of the Cure POGZ Disorders Foundation. It shares how her son’s rare disease diagnosis sparked a mission to fund a gene therapy and build a replicable blueprint for curing thousands of other rare diseases. The talk emphasizes resilience, determination, and the power of personal passion to drive change in healthcare.

1/2

Summary: This talk explores the journey of a mother who turned a rare disease diagnosis into a mission for change. It follows the creation of a foundation to fund gene therapy and develop a model that could be applied across thousands of rare diseases. The story reflects resilience, determination, and the power of personal drive to spark transformation in healthcare

1/1

Summary: This talk traces a mother’s path from a rare disease diagnosis to building a movement for change. It follows the launch of a foundation focused on funding gene therapy and developing a scalable model that could help accelerate progress across thousands of rare diseases. At its core, it is a story of resilience, resolve, and how personal purpose can drive real transformation in healthcare.