The ‘Cure Pogz Disorders Foundation’ ( CPDF) Mission is to urgently improve the lives of individuals and families affected by POGZ gene disorders by funding and accelerating cutting-edge science to discover treatments integral to our Path to Cure, while supporting and advocating for patients and families.

 

Cure POGZ Disorders Foundation is also proud to be a part of the Save Rare Treatments Coalition and the Genetic Alliance Community Advocacy Hub. By building power through community organizing, we amplify the voices of families affected by POGZ-related disorders and work collectively to influence public policy. This collective advocacy strengthens our ability to push for systemic change and improve outcomes for those living with rare genetic conditions.

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At the Cure Pogz Disorders Foundation, we recognize that time is of the essence. Each day without treatment means another day where those affected by POGZ disorders fall further behind in their development. This urgency drives our commitment to not only fund research but to also break down barriers between scientific discovery clinical practice . We are dedicated to fostering collaborations with leading researchers, clinicians, and biotech innovators to fast-track the development of gene therapies that hold the promise of transforming lives.

 

Our mission extends beyond just finding a cure for POGZ / White Sutton syndrome disorders—it’s about creating a ripple effect in the field of genetic research. By supporting pioneering studies and innovative therapies, we aim to contribute to broader scientific advancements that could benefit millions, from children facing rare genetic conditions to adults battling complex diseases like Alzheimer's and Parkinson's. Through relentless determination and a community united by hope, we believe that the breakthroughs we achieve today will pave the way for a healthier tomorrow.